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Vive LaFrance: Life as I know it

CHARITY, Do You Know Her?

I don't just try and solicit T-shirt sales for Acromegaly - Rare Disease Awareness (but I'm doing that too). Second Awareness T-shirt Campaign! Acro-What?2 I walk the walk – CHARITY, do you know her? When you're home, sick… chronic, you lose your... Continue Reading →

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Gearing up for My Own Rare Disease Week. Are You In?

I have no idea if it's going to work. But I started with... Wanting to go to Rare Disease Week to Advocate Not receiving Art (cheating scandal ta boot!) or Advocate Travel Stipend.  Physically not up for going. Long days... Continue Reading →

I Have an Idea… Are You Interested?

There are no real Awareness efforts for Rare Disease and Chronically Ill. If I'm wrong please point me in the right direction. (I'm talking large scale here, not those of us trying to go it alone) I want to try... Continue Reading →

Chem-Free but Bailed for Some Fun.

I had a car for two weeks... I haven't had a car of my own in about 15 years. Paul was a lucky boyfriend —gave him the brand new car I bought so I could drive up and see him —I just couldn't... Continue Reading →

A Fresh Start…

I was going to write about The "cheating" of the Rare Artist Competition for people with Rare Disease. But why? Because I need it off my chest. I'm not great at tolerating lies and cowards. People lied. People cheated. People ignored. Instead... Continue Reading →

I’ve Been Paying Attention.

Getting the chemicals out is a tough process. I mean, you just can't throw out bottles of shampoo and dish soap. You can't dump it down the sink —bad for water supply. If you throw it out —seeps into the... Continue Reading →

Maybe I’m a Fork…

It's been on my mind  —how do I articulate and hit publish… Yes, I'm chronically ill but no, I'm not a spoonie (it just doesn't resonate with me and that's ok). If I was a spoonie I'd be in the... Continue Reading →

Lucky 13

I often see articles about caregivers but they're not often by the receiver of that care. Don't get me wrong, I certainly have seen them, but most of them are lists of things to remember to thank your caregiver about.... Continue Reading →

So Aside From Some Sort of Crud, My 2017 Cleanse Has Begun!

When I started this blog on a whim and a challenge I knew it would not only be about acromegaly. Chronic Disease isn't always about the specific disease. This post is about beating the flu/cold/virus naturally.  I did name the blog... Continue Reading →

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