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Vive LaFrance: Life as I know it

International Rare Disease Day 2017

It's International Rare Disease Day and I Advocate for All Rare Diseases, especially my own. Please make yourself aware that typical symptoms that fall under "everything-under-the-sun" could be something more serious. What do you see when you look up Acromegaly – a... Continue Reading →

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Rare Disease Week 2017

My rare disease is Acromegaly. I'd like to Raise Awareness for very, early, they-don't-have-a-name-for-it-yet, acromegaly or pre-acromegaly, full-on acromegaly that cannot be reversed (Can't un-grow stuff), and for the need for alternative therapies to to address the irreversible damage that medications can't... Continue Reading →

How ‘Bout Knowing the Early Symptoms Too!

When you look up acromegaly symptoms you'll find at the top of the list or the only ones on the list:  ✋️Large Hands and Feet 👱 Enlarged Facial Features 🎤 Deepened, Husky Voice due to Enlarged Vocal Chords and Sinuses 🤓 Impaired... Continue Reading →

CHARITY, Do You Know Her?

I don't just try and solicit T-shirt sales for Acromegaly - Rare Disease Awareness (but I'm doing that too). Second Awareness T-shirt Campaign! Acro-What?2 I walk the walk – CHARITY, do you know her? When you're home, sick… chronic, you lose your... Continue Reading →

Gearing up for My Own Rare Disease Week. Are You In?

I have no idea if it's going to work. But I started with... Wanting to go to Rare Disease Week to Advocate Not receiving Art (cheating scandal ta boot!) or Advocate Travel Stipend.  Physically not up for going. Long days... Continue Reading →

I Have an Idea… Are You Interested?

There are no real Awareness efforts for Rare Disease and Chronically Ill. If I'm wrong please point me in the right direction. (I'm talking large scale here, not those of us trying to go it alone) I want to try... Continue Reading →

Chem-Free but Bailed for Some Fun.

I had a car for two weeks... I haven't had a car of my own in about 15 years. Paul was a lucky boyfriend —gave him the brand new car I bought so I could drive up and see him —I just couldn't... Continue Reading →

A Fresh Start…

I was going to write about The "cheating" of the Rare Artist Competition for people with Rare Disease. But why? Because I need it off my chest. I'm not great at tolerating lies and cowards. People lied. People cheated. People ignored. Instead... Continue Reading →

I’ve Been Paying Attention.

Getting the chemicals out is a tough process. I mean, you just can't throw out bottles of shampoo and dish soap. You can't dump it down the sink —bad for water supply. If you throw it out —seeps into the... Continue Reading →

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